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Welcome to

Hertfordshire M.E./CFS Support Group

(Previously St Albans M.E Group)

We are a local community group run by volunteers providing self-help, support and social sessions for people with M.E/CFS/Post Viral Fatigue Syndrome/Fibromyalgia. Regular meetings are held, currently online, because of Covid restrictions, for people across Hertfordshire.

 

During lockdown we have supported each other via our Zoom meetings. Please do join us for a chat and quite often a good laugh! If you're not feeling great we all understand and it often helps to overcome loneliness to see some friendly faces who can offer support.

 

We invite guest speakers, share ideas, discuss the latest research, and enjoy quizzes at our meetings. We also have regular gentle yoga/relaxation classes online.
 

You can chat online, get advice and share ideas by joining our Facebook group. We also keep in touch with a quarterly newsletter.

To join, please click on the 'Join now' button above. If you would like to know more or have any questions call us on 0208 123 2783 Wed & Thurs 1pm to 4pm charged at local call rates or email hertsmecfs@gmail.com

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Next Meeting 

Our fortnightly zoom meetings are  Thursday 1pm to 2pm

Members also arrange local meet ups in the park for picnics and a cuppa, We are reviewing our meetings from London Colney Community centre

 

Long Covid 
We have seen our first new members now who have long covid and after little improvement then being diagnosed with CFS/ Post viral fatigue syndrome. 

Exhibition

We will be holding an Art Exhibition 12th May 2022 to 24th May 2022 In St Albans Town Centre. 

To celebrate our members creative work, raise funds and raise awareness. For more details CLICK HERE

    In memory Of Martin Cooper

            and Sohail Alibhai

 Zoom Yoga

Yoga zoom sessions on Saturday mornings 10.50am.
This is gentle yoga with stretching and relaxation.
Email for more details

Parents of children

with ME/CFS/PVFS

We welcome you to join us, to connect with other parents via facebook and relevant guest speakers

Latest news

 

The new NICE guidelines

 

The new guidelines for M.E/CFS is out. See here

#MillionsMissing 2022

This year to raise awareness and funds we will be holding an Exhibition in Collective Gallery, Holywell Hill, St Albans Town Centre For Full Details click here

Members will be exhibiting their art work and some will  be selling to raise money for various organisations and charities. Please come and have a look and support us. 

 

Next Meeting

Meetings in person are suspended at present ans will be reviewed in spring.

We are holding Zoom meetings for members. These are fortnightly Thursdays 1pm to 2pm

We also aim to hold zoom meetings for Parent of under 18 yrs to connect.

Our YouTube Channel

Check out our YouTube channel, click here

Hertfordshire ME/CFS Support Group funding

 We would like to thank our supporters:

  • Hertfordshire Community Foundation for funding for IT equipment 

  • Hertfordshire County Council

  • local councillors for locality budget funding from Hertfordshire County Council.

  • Hertfordshire County Council

  • TGA Mobility 

  • St Albans District Council for getting us started and our 2022 Exhibition

In memory of Markus Liebich

A library for our group has been set up thanks to donations in memory of Markus more details here

Services and links

Support for Parents of children with ME/CFS/LongCovid

Education support for medical absence (hertfordshire.gov.uk)

Citizens Advice for help with many things including benefits, forms and support, click here

Communities First: Support adults with shopping, prescriptions and many things. Call 0208 207 5115 or  click here

HertsHelp: Need support and don't know where to turn? Start with HertsHelp, They offer food support, advice on health and disability issues and so much more. Call 0300 123 4044 or click here  

St Albans District Council: click here, Advice and Information

Hertfordshire community meals: Hot meals delivered, click here, Apetito Meals on Wheels 

St Albans Good Neighbour Scheme for practical help and befriending, click here 

Harpenden Helping Hands, for practical help and support, click here 

HCC provide help for adults at home. equipment, assessments and blue badge. Call 0300 123 4040 or click here 

Age UK, St Albans & District Advice, befriending, help in the home, InTouch scheme. Click here, Age UK:

Apply for help towards your towards electricity bill, click here, Warm Home Discount scheme

Discount for water bills through the Watersure Scheme is easy to apply for if you are on a low income, click here 

Sponsored Swim

One of our members Jon did a sponsored swim of 2 miles! He raised £480 for the group. Our hero!

A big thank you from all the group x

Dr Sarah Myhill's Talk for Omega ME support group Oxford 2016

Counselling & CBT through the NHS via self referral or your GP, click here, Wellbeing Service

New Leaf College offers free workshops for wellbeing. These are done via zoom, click here 

Home-Start provide support for famillies with children up to 12 with experience of M.E, click here, Home-Start

Oxygen thereapy is avaliable people for pople with M.E/CFS/Fibromyalgia through Hertfordshire MS Therapy Centre, click here, Hyperbaric Oxygen Therapy

Carers in Herts provide advice and support for unpaid carers. Click here, website or call  01992 586969

Hertfordshire County Council Money Advice unit. Factsheets, benefits information, debt advice and other money matters, click here

Dial a ride transport provide help for those who can't use public transport, click here

The Counselling Foundation provide free NHS or low cost counselling, click here

Need help with Water bills : Watersure scheme Click here to find out how to apply