Welcome to
Hertfordshire M.E./CFS Support Group
(Previously St Albans M.E Group)
We are a local community group run by volunteers providing self-help, support and social sessions for people with M.E/CFS/Post Viral Fatigue Syndrome/Fibromyalgia. Regular meetings are held, currently online, because of Covid restrictions, for people across Hertfordshire.
During lockdown we have supported each other via our Zoom meetings. Please do join us for a chat and quite often a good laugh! If you're not feeling great we all understand and it often helps to overcome loneliness to see some friendly faces who can offer support.
We invite guest speakers, share ideas, discuss the latest research, and enjoy quizzes at our meetings. We also have regular gentle yoga/relaxation classes online.
You can chat online, get advice and share ideas by joining our Facebook group. We also keep in touch with a quarterly newsletter.
To join, please click on the 'Join now' button above. If you would like to know more or have any questions please email us at hertsmecfs@gmail.com
Online Meetings
Our next Zoom meeting
will be held on
Thursday 14th July
at 2pm - 3:30pm
Become a member
to join us!
In-Person Meetings
We hold monthly in-person meetings at London Colney Community Centre, St Albans.
Members also arrange local
meet ups in parks or coffee shops across Hertfordshire.
Long Covid
We are here to support those with Long Covid and have seen our first new members who have Long Covid and after little improvement have been diagnosed with CFS / Post Viral Fatigue Syndrome
Zoom Yoga
Yoga zoom sessions on Saturday mornings 10.50am.
This is gentle yoga with stretching and relaxation.
Email for more details
Parents of children with ME/CFS/PVFS
We welcome you to join us and connect with other parents via Facebook and relevant guest speakers
Latest News
#MillionsMissing 2022
During ME Awareness Week in May we held an exhibition, in St Albans, showcasing our member's artwork to raise awareness and funds.
As well as lots of awareness, we raised £350!
New NICE Guidelines
click here
In-Person Meetings 2022
Held at London Colney Community Centre from 11am-1pm on the following Wednesdays:
July 27th
August 24th
September 28th
October 26th
November 23rd
December 14th
Zoom Meetings 2022
Held online from 2:00 - 3:30pm on the following Thursdays:
July 14th
August 11th
September 8th
October 13th
November 10th
December TBC
We would like to thank our supporters:
-
Hertfordshire Community Foundation for funding for IT equipment
-
Hertfordshire County Council
-
local councillors for locality budget funding from Hertfordshire County Council.
-
St Albans District Council for getting us started and our 2022 Exhibition
In memory of Markus Liebich
A library for our group has been set up thanks to donations in memory of Markus more details here
Jon's Sponsored Swim
Jon has raised £480 from his sponsored two mile swim! Our Hero!
A big thank you from all the group.
Dr Sarah Myhill's Talk for Omega ME support group Oxford 2016
Services and links
Chronic Fatigue Syndrome & Chronic Pain Self-Management Service | Hertfordshire Community NHS Trust (hct.nhs.uk) For east and North Herts residents
Community, musculoskeletal (MSK), pain and postural stability :: Herts Valleys CCG for residents in Herts Valley area.
Support for Parents of children with ME/CFS/LongCovid
Education support for medical absence (hertfordshire.gov.uk)
Citizens Advice for help with many things including benefits, forms and support, click here
Communities First: Support adults with shopping, prescriptions and many things. Call 0208 207 5115 or click here
HertsHelp: Need support and don't know where to turn? Start with HertsHelp, They offer food support, advice on health and disability issues and so much more.
Call 0300 123 4044 or click here
St Albans District Council:
St Albans Good Neighbour Scheme for practical help and befriending, click here
Harpenden Helping Hands, for practical help and support, click here
HCC provide help for adults at home. equipment, assessments and blue badge. Call 0300 123 4040 or click here
Age UK, St Albans & District Advice, befriending, help in the home, InTouch scheme. Click here, Age UK:
Apply for help towards your towards electricity bill, click here, Warm Home Discount scheme
Discount for water bills through the Watersure Scheme is easy to apply for if you are on a low income, click here
Counselling & CBT through the NHS via self referral or your GP, click here, Wellbeing Service
New Leaf College offers free workshops for wellbeing. These are done via zoom, click here
Home-Start provide support for famillies with children up to 12 with experience of M.E, click here, Home-Start
Oxygen thereapy is avaliable people for pople with M.E/CFS/Fibromyalgia through Hertfordshire MS Therapy Centre, click here, Hyperbaric Oxygen Therapy
Carers in Herts provide advice and support for unpaid carers. Click here, website or call
01992 586969
Hertfordshire County Council Money Advice unit. Factsheets, benefits information, debt advice and other money matters, click here
Dial a ride transport provide help for those who can't use public transport, click here
The Counselling Foundation provide free NHS or low cost counselling, click here